10/25/2014

"You're Not ADD (Part 1): You're a Blonde"

My friends had no trouble identifying what was different about me, but getting an official diagnosis was harder than I thought.


When my son was diagnosed with ADD, the inattentive kind, it put me on my own path to understanding my own attention pitfalls. As hard as it was to get him sorted out at fifteen, my own out-sorting has been even more challenging. This post begins a new, intermittent (naturally) series about trying to get to my own diagnosis.
Blonde Hairdo
There are those of us out there who wear our difference so naturally that it becomes part of our personality.
I hear stories all the time about how quickly doctors prescribe Adderall and Ritalin to anyone who seems a little distracted. But there are those of us out there who wear our difference so naturally that it becomes part of our personality.
Here is a list of character traits that have been assigned to me (mostly fondly, to my good fortune), and to so many others who may be secret ADHD sufferers.

  1. Quirky
  2. Weird
  3. Chatty
  4. A Social Butterfly
  5. Naturally Stoned
  6. Lazy
  7. Unmotivated
  8. Half-a*ed
  9. Spontaneous
  10. Flexible
  11. Energetic
  12. Distracted
  13. Spacey
  14. Space Cadet
  15. A Dreamer
  16. A Visionary
  17. In My Own World
  18. On My Own Planet
  19. In La La Land
  20. Moody
  21. A Temperamental Female
  22. A Bit Nuts
  23. Bubbly
  24. Ditzy
  25. Dizzy
  26. Scattered, and my personal favorite....
  27. Blonde 
OKAY! I can own that! My blonde hair twists and curls chaotically, in every direction — not unlike the mind underneath it.
Blondes have more fun, right? And, because they help me laugh at my own moments of idiocy, I am often amused by jokes about people being dumb. Songs, too. ("Cuz I’m a blonde — B-L-A-N-D! / cuz I’m a blonde — don’t you wish you were me?" — Downtown Julie Brown)

My favorite blonde joke, for those of you who still remember Wite-Out™ and Liquid Paper®, goes like this:
Q: How can you tell a Blonde has been using your computer?
A: The little white marks on the screen.
A funny image to be sure, but the message behind this joke is actually deeply relevant to the ADD journey: until you get the right diagnosis, all the corrections you TRY to make can’t really solve the problem.

10/16/2014

In the Mood for a Funk?

Living with rejection-sensitive dysphoria — the soul-sucking downside of attention deficit.
I wrote recently about the first thing William Dodson, M.D., says everyone with ADHD has: anInterest-Driven Nervous System. The second thing he says everyone with ADHD shares is an emotional response called Rejection-Sensitive Dysphoria. I kind of don't want to write about it, because there's that impulse to skip past the hard stuff and focus on the fun stuff. But it's hard when your mood falls off a cliff for what seems like such a little thing.
ADHD Definition, Talking About ADHD, What ADHD Means
You get so tired of this feeling you want to give up before you even start.
— Kristen Caven
If you have this thing, you know what I'm talking about. If you don't, imagine (or remember) yourself as a teenage girl whose stomach is churning because there are so many choices in her closet and it's impossible to choose an outfit and the wrong combination could give her away as being different and bring the harsh and ultimately life-ruining judgment of her peers.
Or, a boy who lashes out at his brother's friends because it seems like he's never getting a long enough turn in the video game and it's not fair. Or a child who squeezes into a corner behind the door and cries at their own birthday party because things are not going the way they imagined. Or a grown-up who throws a party and can't seem to be in the moment to enjoy it.
It's what, eventually, makes you lose interest in that job you thought you wanted. Or hit "close window" instead of "submit" because you are not confident you'll win that award. Or fall into a funk and turn into a jerk when that guy/girl you like likes someone else. Or talk yourself out of liking that guy/girl as you eat/drink your troubles into oblivion. It's yeah, didn't really want that; those grapes were sour anyway. It's what keeps you stuck. Or going around in circles. You get so tired of this feeling you want to give up before you even start. It's one reason why people with ADHD don't achieve their potential. It's why an older man will decline an invitation to socialize because he's realized, or decided, he's "not good with people."
It helps to know RSD is a thing, if for no other reason than to be able to go, "Oh, now my brain is doing that thing it does." It helps to know that social skills might not come as naturally to you as they do to other people. And it's okay to get some help breaking down the details so you can understand the rules.
Acceptance of the downside of ADHD also helps you accept the upside. And, fortunately, in keeping with my theory that the nature of ADHD carries the seeds of its own cure, there are at least two wonderful upsides:
1) Forgetfulness can be a blessing when it comes to bad moods.
2) Some sparkly distraction will surely come along soon!

9/30/2014

Blue Highways


So your child has ADHD. Welcome to a different country...now throw your road map away!

At a school where I was teaching about my book, The Bullying Antidote, the principal told me their special ed parents' club called themselves the “Holland Group.” I asked her what the name meant. She handed me a many-times-copied story that she had found on the Internet.
Blue Highway
In 9th grade, the highway to success seemed clear. But when my son's organizational difficulties kept steering him off onto side roads, we had to find a new map.
“Welcome to Holland” is a 1987 essay by Emily Perl Kingsley that describes what it feels like when you learn that your kid has a disability of any sort. “When you're going to have a baby,” the essay says, “it's like planning a fabulous vacation trip — to Italy.” She describes in detail the iconic things one looks forward to in Italy — “The Colosseum. The Michelangelo David. The gondolas in Venice,” and how one learns the language. But when you get off the plane, you find you are in Holland instead.
It’s not that Holland isn’t a wonderful place — it is. There are windmills and tulips and wonderful people. But it just isn’t what you planned. And when everyone else is talking about Italy, well, you are sorry you missed it, but you wish they were interested in hearing about your trip to Holland as well!
Watching my son Enzo evolve in high school has been like getting off the plane in Holland. We chose a school with an engineering academy (which he loved), and a Paideia program (which I loved)...and started making plans (akin to driving a Lamborghini around in the Colosseum).
In 9th grade, the highway to success seemed clear. But when his organizational difficulties kept steering him off onto side roads, we had to find a new map. As it turned out, the new paths took him to some wonderful places, as Blue Highways (a term coined by author William Least Heat Moon to describe the back roads through America) tend to do.
For me, the strangest parts about being in Holland, or on the Blue Highways, are:
  1. Seeing so many of his friends on the road to Rome they originally chose.
  2. Managing the (ridiculous and unnecessary) resentment at their achievements.
  3. Identifying with a “disorder” or “disability” in the name of self-acceptance when it’s just life, really.

Becoming an advocate and spokesperson for the "Blue Highway lifestyle" was an unexpected turn for me. But that’s the thing about getting tickets to Holland. Our new reality calls us as parents to step up to a new level, welcome the dazed new arrivals, and share our road maps.

9/18/2014

Like Son, Like Mother?

No need to wonder where my son's attention issues came from. This apple fell from my tree.

"He definitely has attention issues, but he doesn't have ADD."
This is what the social worker told me after evaluating Enzo's questionnaires, filled out by myself, himself, his dad, and two teachers (one of whom gave him the label of "high priest in the church of no homework," whose class he barely passed).
Boy Doing Homework
Discussing all the problems and pitfalls, it was like watching my own childhood being replayed, and even my life now.
After all, said the clinical expert, he's well-socialized, he can sit still (sometimes for hours on end), and has a good opinion of himself. Of the five matrices that determine ADHD, he scored normal in four of them — but was way off the charts with attention issues. That was after the first report card of ninth grade, where in two years his 4.0 had dropped under a 3.0.
When his first report card of tenth grade appeared, Enzo's GPA had slipped considerably below a 2.0. Now we were desperate for some sort of help, or even just some insight, or a referral to another idea.
I went back to Kaiser and stormed the castle. "So, what do we do about attention issues, for goodness sake? How can I help my child?" The guy gave Enzo one more test, this one on a computer — why they didn't just do that in the first place, I don't know — and voilĂ : a full-blown case of ADD-PI. All of a sudden, the gates of support opened wide.
Within a few weeks, we were in the embrace of what I call Kaiser's ADHD School. I took a series of classes on learning disabilities, parenting practices, and coping skills. We learned about medications and chose one to try. Every week, Enzo and I attended a Teen Group with break-out sessions for parents to ask questions like, "What's with the lying thing?" "How can we stop fighting over homework?" and "Where did he get it from?"
Lightbulbs were going off like crazy in my own head about that one. Discussing all the problems and pitfalls, it was like watching my own childhood being replayed, and even my life now. (I don't have a GPA, but for all my cleverness, I do have a pretty unimpressive AGI.) I had to bite my tongue to keep the conversation on the kids.
I called Adult Psych to explore the possibility that I might also have ADHD. It felt like I could have taught the introductory workshop. I read Driven to Distraction and recognized myself on every page. I took the Kaiser tests...and guess what they told me?
"You definitely have attention issues, but you don't have ADD."

8/30/2014

Keep Calm and C-C-Carry On


How our whole family learned to stop worrying and “C” our way through anxiety.
When Enzo was little, he loved doing sleepovers. But that all changed one year, the year he realized lying awake in strange place wasn't any fun. When he was about six, he stayed overnight with his Uncle Zoom, who had a new baby in the house. Between the distracting sounds and his underlying sleep challenges from ADD, he was up at 4 AM, dressed, ready for the strange night to be over.
the letter C
He really wanted to go away to Science Camp with his class, but could not imagine how he would cope.
After that, he would become hyperaware of the fact he was lying there awake when his friends were dropping off. And then he would start worrying. He’d call to get picked up. Then he’d start planning not to stay over. His dad was sympathetic because that’s the kind of kid he had been. He could never sleep away from home, even if the whole family was with him.
This became a problem for Enzo in 5th grade, when he really wanted to go away to Science Camp with his class, but could not imagine how he would cope.
We signed up for a great class at Kaiser called the “Family Worry Class.” The therapist explained that the people who took the class all had a superpower called sensitivity, which runs in families. She gave us her “Five C’s” for handling anxiety while you’re in the middle of it. They work for your kids, and they work for yourself. In my words, they are:
1. Calm: Take deep breaths. Slow down and don’t rush through it.
2. Cheerlead: Be positive. Tell your kid they can do it — they’ve done so much before.
3. Change the Channel: A distraction can help, like food, a game, or TV; another option is to find ways to cope. (Look, another "C"!)
4. Check In: Let kids talk about their experience and how they're feeling.
5. Continue: Keep going, keep trying, don’t give up.
It was good to learn the therapist's Five C’s. We had been relying too much on our own favorite C’s: CriticizeCatastrophizeCry, get the Creeps, and Chatter about endlessly about how bad it feels.
Thanks to the Five C’s, Enzo made it to Science Camp, and although he didn't sleep much, he felt very proud of himself. The C’s helped him in so many other ways, too — taking tests, going to a new school, and even trying sleepovers once again. Now he’s away practically every weekend, and can think about leaving home for weeks at a time. Maybe even for good! (We'll see how that goes.)
The other great thing about the class was that we went to go help our kid, and ended up helping ourselves as well. 

8/14/2014

The Forklift of Love


Getting a sleepy ADHD teenager out of bed calls for heavy machinery — and a lot of patience from the crew at home.


Until we learned about ADD, it was always a mystery why our little guy couldn’t sleep. Even though Enzo, as a small child, was more than once called “The Thing That Would Not Sleep” by his exhausted-to-the-point-of-a-horror-movie parents, he was a blessedly solid sleeper once he was down. Yet, he surprised us all (as teenagers do) by growing up to be “The Thing that Would Not Move.”
forklift love
Sleeping past nine! Oh, how we reveled in those luxurious summer mornings! It was like being newlyweds again!
Baby Enzo was better than an alarm clock. Even before he was born, I could never stay in bed past 6 AM. During his first decade, those bright little eyes would fly open at six…fricking.…AM. Even on weekends.
Later, when school days became a grind, he’d sleep in until seven. But on weekends, when there was so much more to look forward to, the son would still rise with the sun. "I've got a lot to do today," he'd say when we stumbled into the Lego jungle.
We were so proud the summer before eighth grade, when he took up a new hobby: sleeping past nine! Oh, how we reveled in those luxurious summer mornings! It was like being newlyweds again!
Now that he’s pushing seventeen, the novelty of that has also worn off. On weekends we don’t see him until noon. And on school mornings, trying to get both that brain and body working takes nothing short of heroics.
Trying to wake up a teenager on a school day is not easy for anyone. Trying to wake one with ADD is like trying to get a pig to fly, according to his father, "Dave." ("It's a waste of time, and it annoys the pig.")
His first alarm goes off at 6:15. It’s a song, or rather some electronic song clip, that he has chosen the night before, and it is set on repeat on the iPod that rests in the speaker on his headboard. At 6:30, his clock alarm starts beeping, and now there is a funky rhythmic jam going on in his room. At this point, his dad starts grumbling: “I could always get myself out of bed. This is nonsense.” (Dad has learned to go to work early to save his sanity.) A few minutes later, the radio goes off.
By 6:45, if Enzo has not crawled out to turn off the beeping yet, I go into his room and start shaking his loft bed. Sometimes it takes an earthquake. When he was little and we needed him to move, we’d just bring on “the forklift of love” and lift him out. That became an impossibility after he reached the hundred-pound mark.
Half the time — and I swore I would never do this — I get angry. I start shrieking things like, “Oh, my God! It’s 7:30 already!” Or I get snotty. "Okay, I'm driving you to school without you." But I hate to go this route. While others might respond to the stress in my normally calm voice with a shot of adrenaline, Enzo doesn’t seem to have been built with this response. For him, motivation must come from within. Nagging backfires. In the mornings, the higher-pitched my voice goes, the more he shuts down.
But what goes on in that brain? When I was younger, I remember having just as much trouble getting out of bed, especially after a night of brain-racing. There are stages you have to work through in that transition between the sleep state and the awake state, which, according to the experts from the sleep study Enzo participated in, are constantly at war for our time. “I am working things out,” he mumbles. He’s still achieving the mystical tasks his dream set out for him.
On a good day, he’s up to kiss his dad goodbye. He gets dressed quickly...and then lies down for a pre-breakfast nap.

7/21/2014

The Thing That Would Not Sleep

Enzo's busy brain kept him up and active even as a baby. We had to develop guerilla tactics to ease him into sleep.
We used to dread bedtimes. Once the novelty of being born wore off, once he rested up from that exhausting ordeal, Enzo just could never see the point in sleeping. He just didn’t want to miss a thing. If I wasn’t able to nurse him down, his dad, "Dave," would carry him around the house and the yard showing him how the birds were asleep, the animals were asleep, all his friends were asleep, his toys were asleep, and daddy was, well, dead on his feet.
Top Pick ADHD Kid Can't Sleep
Once the novelty of being born wore off, Enzo just could never see the point in sleeping.
— Kristen Caven, ADDitude blogger
We always thought we were bad parents. His little friends would just put their heads down and close their eyes when they were sleepy. It was probably because of the pacifier that he never learned to self-soothe. It was probably the co-sleeping. And then, after two or three years of that, when he took up combat sleeping, it was probably because we didn’t have the guts to let him cry it out past 2 or 3 AM.
The ADD diagnosis turned out to be a sweet victory. See? He’s neurologically different. He’s got thoughts in his brain. All night long.Thoughts, do you hear me, interesting thoughts! Hah! to you doubters!
Beyond the typically prescribed bedtime baths, off-buttons on TVs, rigid routines (hard to keep when you have ADD, too), and ban on Coke at dinner, we had to work hard to find remedies that worked. When I was a baby, the only thing that would put me to sleep was a drive around the block in the Volkswagon Bug. That never worked for little Enzo — cars, as you know by now, are way too interesting to him.
These things did:
>> A Positive Attitude. Knowing that I was the adult helped me “dominate” my toddler into taking a nap when he needed it. Sometime around age 7, I looked at my husband and said, “You know, even though it hasn’t seemed like it, he has actually gone to sleep every night of his life.”
>> Homeopathics. We discovered these tiny little sugar pills that dissolve on a child’s tongue when the teeth started coming in. They were lifesavers so many times, when dealing with everything from sniffles to stomach aches. Guess what, the right ones can help with racing brains, too! Bach Flower Remedies are also wonderful non-drugs, and always help bring on the Zzzzs.
>> Company. Although a child “should” be left alone to sleep in peace, having a big person there to model being quiet and calm helped Enzo relax. When self-regulation is difficult, having a body with a restful heartbeat and slow breathing nearby provides a neurological pattern to follow. Controlling conversation is the challenge...
>> The “Broken Record” trick helped keep me from being drawn into conversation. I would only permit myself to say, “Today is over, it’s time to sleep.”
>> Touch. Backrubs helped Enzo get in touch with his body. A story about the backrub helped him focus and relax. Favorites were the Weather Report (taught by Dr. Louise Hart), and the one about the cat that walked out and made tracks in the snow.
>> Story Tapes. He listened to a recording of Winnie the Pooh (read by Peter Dennis) over and over and over again. It was long and calming and interesting but a little boring. We found one that worked, and he listened to it every night for four years!
Eventually I developed Mom’s Guaranteed Sleep System with Magic Stories™ that could both hold his interest and bore him to sleep. (Send $99 and two box tops in.)
And then one day he found late night radio and a talk show podcast that allegedly did the same thing. I love you but now get out of my room, Mom and Dad!
As a teenager, Enzo participated in a sleep study and got some sleep coaching, plus he's gotten to know himself a little better. For example, he has also become a writer, and can relax better after doing a brain dump. But whatever he ends up doing with his busy brain, he may always be a night owl, wired to rev up when the rest of us are revving down.